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Page 8 of 13             Padilla et al. Rare Dis Orphan Drugs J 2023;2:27  https://dx.doi.org/10.20517/rdodj.2023.38

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               national data collection, program monitoring and quality assurance, and other operational expenses . The
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               ENBS fee augments the cost of treatment and management of patients .
               Communication strategies
               Communication strategies have been important from the beginning and their mechanisms for sharing NBS
               program information have evolved over the years. While maintaining applicable traditional measures
               (brochures, newsletters, posters, newspapers), the program has added digital media in recent years.
               Pertinent information on NBS can be accessed through the NSRC website, social media (i.e., Facebook and
               Twitter), webinars, and online newsletters [Figure 4].

























                                     Figure 4. Samples of communication materials used by the NBS program.

               The “Newborn Screening in Focus” series is a pre-recorded weekly video discussion with experts, field
               implementers, patients, and policy makers on different NBS topics [Figure 5]. It is aired through TVUP, an
               Internet television (webcast) network operated by the University of the Philippines, which delivers free
               content for information and educational purposes. The first season was launched in February 2023.
               YouTube views have ranged from 110+ to 2300+ per episode, not including downloaded materials used for
               lectures.





























                              Figure 5. Pictures showing interview activities from the “Newborn Screening in Focus” series.
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