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Figure 1. (A) shows a map of surveyed initiatives in Europe. The pan-European study is indicated twice as piloted in both Germany and
Italy; (B) shows the scope of initiatives per country.
Figure 2. Desired impact on stakeholders.
participants (ranging from 10-100 to 101-1,000) than prospective studies (ranging from 10-100 to 100,000
for the largest initiative).
Parent information, enrollment, and consent
Midwives are expected to be the main recruiting HCPs, followed by nurses and other specialized
practitioners including obstetricians, neonatologists, psychologists, genetic counselors, and clinical
