Page 8 - Read Online
P. 8
Page 4 of 4 Jonker et al. Rare Dis Orphan Drugs J 2024;3:28 https://dx.doi.org/10.20517/rdodj.2024.29
Financial support and sponsorship
None.
Conflicts of interest
O’Connor JD is an Editorial Board member of Rare Disease and Orphan Drugs Journal. Jonker AH declared
that there are no conflicts of interest. The views of the authors are their own and do not necessarily reflect
their respective affiliations.
Ethical approval and consent to participate
Not applicable.
Consent for publication
Not applicable.
Copyright
© The Author(s) 2024.
REFERENCES
1. Chan CH, Parker S, Pearce DA. The international rare disease research consortium (IRDiRC): making rare disease research efforts
more efficient and collaborative around the world. Rare Dis Orphan Drugs J 2023;2:28. DOI
2. Mimouni Y, Halftermeyer J, Petton Y, et al. The European joint programme on rare diseases: building the rare diseases research
ecosystem. Rare Dis Orphan Drugs J 2024;3:17. DOI
3. Brooks PJ, Grady AC, Groft S, et al. The division of rare diseases research innovation at the national center for advancing translational
sciences, NIH: mission, history, and current research activities. Rare Dis Orphan Drugs J 2024;3:15. DOI
4. Cavaller-Bellaubi M, Hivert V, Favresse R, Le Cam Y. Framing the European rare diseases field through a structured movement of
patient organisations. Rare Dis Orphan Drugs J 2024;3:23. DOI
5. Jain R, Wang CM, Foster L, Li EY, Nishimura Y, Tsang KP. Paradox of possibilities: the rare landscape in the Asia Pacific region.
Rare Dis Orphan Drugs J 2024;3:8. DOI
6. N=1. N1C annual meeting 2024. Available from: https://www.n1collaborative.org [Last accessed on 9 Oct 2024].
7. Rare Disease Moonshot. Available from: https://www.rarediseasemoonshot.eu/ [Last accessed on 9 Oct 2024].
8. Rare Diseases International. Available from: https://www.rarediseasesinternational.org/ [Last accessed on 9 Oct 2024].
9. World Health Organization. Rare diseases. 2013. Available from: https://www.who.int/standards/classifications/ frequently-asked-
questions/rare-diseases [Last accessed on 9 Oct 2024].
10. ICORD. 2019. Available from: https://www.icord.es/ [Last accessed on 9 Oct 2024].
11. Nabbout R, Zanello G, Baker D, et al. Towards the international interoperability of clinical research networks for rare diseases:
recommendations from the IRDiRC task force. Orphanet J Rare Dis 2023;18:109. DOI PubMed PMC